The current thought in my mind is how do you choose between paying for therapies for your child- therapies that he needs, that are expensive, and are often not covered by insurance- and putting a new roof on the house? The roof that should have been replaced five years ago is beginning to fail. It’s been patched and patched. That choice isn’t too difficult for me. The roof can wait, the child can’t. Effective therapy while he’s young will make a world of difference for the rest of his life.
We joke about winning a small lotto. Just big enough to do the work on the house that we would like to do: remodel 33-year-old bathrooms. But instead, we replace a faucet and recaulk the tub for the umpteenth time. The roof needs to be replaced. Instead, we patch it some more. And we can live with the ugly kitchen chandelier a bit longer.
We are the lucky ones. We don’t have to choose between paying for therapies and paying the electric bill, or putting gas in the car, or putting food on the table. We can give our child the chance that others will never get.
He has received standard therapies that insurance companies usually cover, and therapies that insurance won’t cover. All of these have helped him. As he grows, figuring out what his brain needs is like putting together pieces of a puzzle. And on we go, discovering more pieces.
For those who have to make the really tough choices, how do you choose?